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When life suddenly changes, small joys begin to matter more. Cooking, baking, reading, or even playing a cozy game are no longer just ways to pass the time – they become anchors. In this post, I write about how hobbies turned into steady sources of strength during a more difficult period, and why it’s so important to always make time for the things that recharge us and bring us back to ourselves.

There is a moment when we pause and realize we are not alone. This text is about fear, hope, and the people who hold us when everything feels uncertain. If you need something that doesn’t fix you, just stays with you – this is where it begins.

Ez a történet két hullámos papagájról szól, akik egy magányos időszakban kerültek az életembe, és csendben megszüntették az egyedüllétet. Aprók, törékenyek, mégis erősek és harcosak. Két külön személyiség, akik örömöt, biztonságot és élni akarást adnak pusztán a jelenlétükkel. Megtanítottak felelősségre, gondoskodásra és arra, hogy néha a legnagyobb erő a feltétel nélküli együttlét.

When I first heard the diagnosis NF2, it wasn’t just the name of a disease – it marked the beginning of an entirely new chapter in my life. This post is about what NF2 is, how it affects our lives, and how we can learn to live with a rare, invisible illness – with fear and questions, but also with hope.

If you are reading this, you probably didn’t find this place by accident. This blog is for those living with a rare disease, those who have just received a diagnosis, and for loved ones trying to stay strong. Living with NF2 is not an easy journey, but it doesn’t have to be a lonely one. I share my path, the fears, the breaking points, and the hope — so you know you are not alone. And there is a way forward.